A Celiac On The Move: No Longer Tortured

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Recently, I’ve talked to and met people I never suspected of having of an autoimmune disease. A few of these individuals are former coworkers; others, friends from childhood. They are dealing with Celiac disease, Colitis, Crohn’s, Eczema, Fibromyalgia, Lyme disease, Lupus, Psoriasis, Scleroderma and Sjogren’s syndrome.

All are embracing a multitude of symptoms, with the most common being inflammation and pain. Their manifestations run the spectrum, mild to moderate to severe and everything in between. Their buzzwords to friends, but most often to doctors, are occasional, intermittent and constant.

There are some who don’t have insurance and are traveling the road of uncertainty, always careful not to overdo it, resting when necessary and eating the right foods. Others have insurance (those fortuitous bastards), visiting a plethora of doctors (internists, nutritionists and surgeons, as well as other specialists). There are even one or two who have access to a homoeopathist (you, my friends, are the luckiest of all).

Almost everyone (at one time or another) must use medication, whether it is over the counter, or prescription (and a few are treating with illegal and shared substances – a big no-no to say the least). I encourage all to consider revamping their treatments (with a physician’s guidance of course) by exploring clinical research programs, self-help books, forums and lectures, and learning to eat for your disease type, etc. I say revamp, because I am concerned about those individuals who are taking a myriad of medications without truly understanding the side effects and lethal outcomes. Don’t misunderstand my message, because I really am a proponent of medication (We haven’t made it this far in life without drugs. Those with hypercholesterolemia, hypertension and diabetes know what I am talking about). The right pharmaceuticals support our longevity! However, never lose visibility of those natural properties to be used as a catalyst for bolstering and improving the outcome.

There are opportunities to detoxify your body, controlling the level of inflammation and the number of pills you pop each day, and it begins with some very basic and simple foods we ingest daily, which include ginger, honey, pineapple, coconut and cinnamon, just to name a few. You have a better chance of living healthier and longer when you incorporate a combination of treatments, choosing wisely from a conservative menu.

To many, our conditions might sound/be strange (they were to us too, at first), but now it’s commonplace. We do what we must to be healthy, strong and focused. In other words, we want to be just like you, disease free (that’s if you are one of the fortunate). However, these days it’s rare not to find a person who is confronted with a malady. For many of us it’s an endurance test. However, deep down inside we are more concerned about the outcome, questioning survival against our successes. We are the true evaluators, always exploring and comparing quality to quantity (on occasion with uncertainty, but always with meaningful preservation).

We have many goals, and one is to simply blend in and not cause a fuss, because we bare the burden of disease. Many try to label us with a scarlet letter (that would be a D for disease). We don’t let that get us down. When you make fun, banter, belittle, or jest in our direction, we don’t care for it, but we overlook your condemnation because we just don’t have time for your insolence. You take away from our mission statement, which is always to live life to it’s fullest.

Now is the perfect time to reclaim your body, by nurturing your spirit, reaffirming your commitment to self (FIRST!), believing in your dreams and never losing sight of the true goal, which is nothing more than living your best life through discipline, exercise, healthier food and using medication as an addition to or last resort for achieving positive outcomes.

"Hello! My name is Paul and I am a Celiac. My road to recovery has been long. Any emotion you can think of, I’ve felt! I am here to tell you that I have overcome some of the most horrific challenges of my life (I thought being bullied as a child was the worst, but this was a bigger challenge, but not any less painful because pain is pain, whether it be mental, physical or emotional). I have been down in the depths where only pity, fear and shame lurk. I was in a place where life just wasn’t that important to me anymore. I lost interest in others and myself. I was by no means clinically depressed, but confused about what to do next. I never saw a future because I only had red and blue days."

I was (and still am) a tad bitter because of the people I see who refuse to take care of their bodies, mistreating the one thing that demands and requires daily attention and care. Too many are overindulging in the extremes of smoking, drinking, drug use, voracity, etc., and all of these insidious choices are compromising and demeaning to our individual goals and the civility of others.

I don’t hold these fatal mistakes against those who don’t or are still not getting it. I am hopeful they will embrace and explore a new understanding soon, which will make us all stronger. We must really learn to eat better, exercise more and achieve quality sleep through consistency and organization with our schedules, which can only be accomplished with balance. Too many of us live for the day, and it shows in your face and demeanor.

I can’t impress upon you enough the importance of having a support system. I had/have the best support system I could ever imagine. I have a friend that championed my cause in the best and worst of times. He allowed me the opportunity to sound off in the most belligerent of ways, but always understood it was not a personal vendetta. There were tears and laughter, and one day all will make for a great book. It’s been a roller coaster of a ride and I am thankful he walked behind me, keeping me from drifting off course, beside me so that I never felt alone and on occasion, in front of me because even I get scared. BDL (the Ernie to my Bert), thank you for being the one-man support system of helping me make it through and for believing in my resolve.

To the many people I’ve talked to, I’ve enjoyed listening to all of your stories. They have changed me in ways you can’t imagine. To the Overcoming and Determined for Greater Health Divas and the Kings of Toughness, your journey is my journey and together we will stay strong making the best choices possible, never for a second compromising our health and always choosing quality to quantity, for this is a mandate (not for some, but ALL).

There are a select few who are not pushing themselves nearly enough. To you, I say, PUSH! …If you truly want to be better, PUSH! … If you really want to be stronger, PUSH! … If you really have an interest in living your best life because it’s your choice, and yours alone. (Pursue – Unapologetically – Something – Happier, for this is PUSH.)

Know your body. Know your mind. Know your limitations. Know your strengths and weaknesses. Now sit down and map out a plan of action for your new day.

I’ve been back to my old self for sometime. I am healthy and active, and all because I am a Celiac who has decided to live my best life one meal at a time.

Thursday, December 16, 2010

No Longer Tortured

Author: paerki | Posted at: 9:59 PM | Filed Under: No Longer Tortured

Sadly, so many of us were tortured as children because we were made to eat things we didn’t like, for instance, Brussels sprouts. However, I was one of those odd children because I loved them, but they had to be overcooked, or as my friend, Sharon, would say, “they have to be cooked to death" - LOL.

Times have changed, and my love for Brussells sprouts hasn’t. Well, maybe just a little. The thought of overcooking them is an abomination. Lightly seasoned and roasted, they are heaven!

I found a recipe online that I liked, but of course had to add my own twist to it, which had me paring them with carrots, and adding additional spices, orange zest, peppercorns and honey. You must try this recipe! It’s that good, and easy too.

The best part for me is it’s gluten-free. I’m still living my best life one meal at a time and hope you are too, Celiac. – paerki

Roasted Brussels Sprouts with Orange Zest & Whole Peppercorns

6 cups fresh Brussels sprouts (peel outer layer and slice in half)
2 cups fresh carrots (slice to medium thickness)
2 tablespoons orange zest
¼ cup of balsamic vinegar
¼ cup of extra virgin olive oil (EVOO)
2 tablespoons whole peppercorns
2 tablespoons garlic (minced)
1 tablespoons sea salt
2 tablespoons honey

Add sprouts and carrots to large bowl. Add EVOO and coat evenly. Add remaining ingredients and coat evenly. Cover and refrigerate 20 minutes.

Heat oven to 375.

Grease baking sheet and pour mixture. Roast 10 minutes. Stir. Roast an additional 10 minutes.

You’re done! Now, wasn’t that easy?

About Me

I consider myself a down-to-earth, happy-go-lucky guy, who is just making it up as I travel through life, adding a virtual laugh track here and there to amuse others and myself. I have a friendly personality, which is expressive, warm, upbeat, fun and positive. I love meeting new people. I thrive on communication, organization, diversity, creativity and laughter. My personal interests include blogging, photography, gardening, travel, the cultural arts (theater, symphony, opera & museums), music and current events, as well as spending time with my friends.

Paul Eric Kilmon (PAERKI)
paerki@aim.com
Baltimore, MD (USA)

My Voice

No matter what, know this: You are never alone. There are people out there who’ve struggled, endured, made it through and are sharing their message of survival. No, they might not be at your side, but their spirit is out there in words, attempting to help others on their journey. Let’s all unite by sharing our individual stories, remedies for healthy living, food and recipes to keep us strong, and let’s find the laughter too because it can be some of the best medicine. Always remember, there is power in numbers, so allow your voice to be heard today.

The picture I selected for this blog is a testament to my overcoming amazing challenges, which have left me more determined than ever to stay healthy, strong and focused. Today, life begins again and I can finally say, I’m back to my old self… Healthy, Active and Living Gluten-Free.

Communication Is Key

Positive and friendly communication is key when educating others about your need for gluten free food. When dining out, consider the following when communicating with your waiter. - paerki

I have Celiac Disease and cannot tolerate gluten. If I eat any food, product, chemical additive, or stabilizer containing even a trace of wheat, rye, oats, barley, triticale, malt or any derivatives of these grains, I will become ill. I am able to eat foods containing corn and rice. If necessary, please check with the chef to make sure my food does not contain any of the ingredients listed above and help me order a meal I can safely enjoy. Thank you very much.

(The information above was extracted from the Gluten-Free Bible by Jax Peters Lowell. This book is a must have for anyone with Celiac Disease.)

Moderation Vs. No

I’ve been gluten-free a little over a year. Prior to that time I was enjoying bread, pasta, an occasional beer and a few other products, which all contained my nemesis, gluten. I wasn’t consuming large quantities, but what I was consuming was making me incredibly ill. The disease affected me so much I developed chronic pain, often praying for someone to simply put me out of my misery. The visual aspects remind me of a horror/slacher film filled with blood and gore. At times it was terrifying. There were days when I thought, “Is this it? Is the end? Oh my God, I’m going to die!” Yes, there was drama and rightfully so. There are no exaggerations here. The weight fluctuations, sallow eyes and pasty skin were all symbolic of my body not receiving the proper nutrients it needed for sustainability.

I recently talked to a few individuals who have Celiac Disease, but are not totally gluten-free. They have cut many products out of their diet, but don’t feel the need to go all the way. What’s that all about?! Needless to say, I’m stunned by their ignorance and lack of self-awareness. I think it’s time these Celiacs learn to say no, before it’s too late.

I have friends who are not embracing an autoimmune disease, but are dealing with other illnesses: diabetes, hypertension, obesity, cancer, alcoholism and smoking addiction. It pains me to see these individuals suffer. What saddens me even more is to know there are things they could be doing to improve their quality of life, but refuse to listen, thus having ignorance rule their lives. I guess there is truth in the adage of “old habits die-hard.” I also know that sometimes (more often than not) lessons need to be learned the hard way.

I have diabetic friends who continue to eat an abundance of sweets, increasing their weight and causing circulatory problems. I have hypertensive friends that salt everything their eyes see. I wouldn’t be surprised if one particular friend was salting her lipstick before applying. I know other people who are obese and still continue to supersize their meals. Harsh government criticism has stopped some restaurateurs and fast-food chains from supersizing portions, but that hasn’t stopped most from eating a second and third helping at the dinner table, and splurging on desserts. Hasn’t anyone heard of eating in moderation?

I wish I were lucky enough to continue eating like I always have (everything), but I can’t because I am a Celiac. My comment earlier about people not eating too much gluten is what I hear others saying who are dealing with the same disease, instead of just eliminating it totally from their diet, which is the only cure. Unfortunately, you’re speaking the wrong language. Celiac Disease = No gluten! (None! Nil! Zip!)

As for my friends dealing with other health dilemmas, when will you champion your own cause? When it’s too late? Many of you don’t have to say “no.” You can learn to live life, still on your own terms, by applying moderation. Eat less, exercise more and live life healthy and longer.

I must admit, I am still a tad bitter about my diagnosis, but I am better than what I was… bitchy. I’ve come full circle. I’m back where I started… healthy and active (with no medications). The days are becoming fewer when I want to make a mad dash towards someone who is eating a sandwich and demand they give me a bite. I still stand a bit too long in the bakery aisle. Someone from behind the counter always asks, “Can I help you sir.” I say, “No. I’m just looking.” I can only imagine what they’re thinking. I just know they see me flirting with the fresh baked bread, eyeing the cookies and salivating over the hot sticky buns. Yes, I’m horny for baked goods. (LOL)

Still, I remain practical, sensible and proactive in my fate, and I accomplish this all by living life one meal at a time.

Doing The Unthinkable

It’s true! There are more and more people who are electing to go gluten-free who are not affected by a gluten allergy. Like many people, I‘m thinking… WHY?!

For those who don’t know (and periodically need to be reminded), Celiac Disease (CD) is a digestive disorder causing individuals to have an immune-system reaction to the protein gluten. The reaction can be mild to severe. Sadly, mine was severe.

Gluten has the ability to ravage the small intestine, preventing it from absorbing nutrients, which can lead to a multitude of problems (bone and liver damage, a compromised nervous system, as well as a host of other challenges, some being life threatening if not properly treated).

For a person with CD, a gluten-free diet is mandatory. However, I am learning there are those who are choosing a gluten-free life style because they feel it is healthier (this I’m uncertain about). I have friends who are affected by Crohn’s Disease, GERD and IBS who’ve elected to follow a gluten-free diet and have noticed a significant change in their symptoms. Many report a reduction in flares, and symptoms that were once severe are now mild.

I’m sure there are doctors who will disagree with a patients’ need to go gluten-free, especially when they don’t need to, and there are even some who think it might be psychosomatic. However, I say, if it works do it. Please don’t misunderstand me. There are always people doing things they shouldn’t be doing, thus damaging themselves in the process. One must always consult with their physician when making dietary changes, or when choosing new therapies (i.e., herbal supplements and vitamins).

I was bleeding miserably at the time when I was thought to have had Crohn’s Disease. It was horrific. A friend of mine sent me a few articles that talked about coconut as a treatment for Crohn’s flares. Shortly after, I decided to use coconut as a therapy. I’m forever thankful I did. My discharge of blood was cut in half.

However, I was still experiencing a host of other problems, all centering on inflammation. Unfortunately, I have allergies to medications that would have helped to remedy this problem. Not until I began my gluten-free diet did I have any relief. Finally getting a true diagnosis was life saving for me.

Like most GI conditions, mild symptoms can creep up from time to time and out of nowhere. Much of this for me can be from having processed or spicy food. I don’t eliminate these foods from my diet altogether, but I do limit my consumption. I’m a healthy eater anyway and don’t eat large quantities of food that my body finds undesirable. However, all of my food is now gluten-free… Thank God!

Each week I am excited to learn about new food options, as well as recipes that are helpful to my body, mind and spirit. I’m lucky because I have a great network of friends who look out for me.

Regardless of being a Celiac, if you are someone suffering with a disease that requires dietary restrictions, make sure you follow the rules. When you cheat, you cheat yourself out of a lifetime of happiness. The old saying is, “cheaters never prosper,” and I’m here to tell you they don’t.

Live your best life by eating the right foods one meal at a time.

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